A reader is desperate for advice for his brother, who has been living with epilepsy for the past 20 years.  It started after he suffered a brain haemorrhage when he was 18, and he is now on several different medicines that leave him with poor concentration and a poor memory, although they are controlling the seizures fairly well.  Currently, he is scheduled for surgery, but is not exactly sure what this will involve.  He thinks the surgeon may want to remove or destroy the part of the brain where the seizures are originating from.  Do readers have any experience of this type of surgery?  Or can anyone recommend any alternative treatments for epilepsy?

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The National Society for Epilepsy at Chalfont St Peter have an excellent website and free helpline for epilepsy sufferers and could probably put this person in touch with someone who has had a similar operation.  They have loads of literature on epilepsy, including epilepsy surgery.  So far as medication is concerned, iIt is important to see a really good Neuro-specialist and not just a GP as there are a wide variety of epilepsy medications available and different ones work for different people.  I have a daughter with epilepsy who has been on three different drugs;  the first turned her into a zombie and did not control the seizures, the second had very unpleasant side effects and also did not control the seizures, and the third has worked brilliantly (touch wood) for three and a half years.

My mother was had brain surgery because she was hospitalized after a fall for a subdural heamatome. They forgot to treat her in time so now the damage is large and part of brain is dead.

The Epilepsy medication gave side-effects and did not keep the seizures away. Nor could they guarantee anything so I started searching. Choline can help. Since I have a product line of vitamins in my company I had her started using Food for Thought. Although she really hates the taste she used 5 sachets a day and we reduced her medicine to 1/3 of what the neurochurgeon suggested. My mother now uses 2 sachets a day and a child quantity of medication and is over 1 year without seizures. She suffers from brain damage since 1 1/2 year. The neurologist finds it amazing and still disagrees with me that I took the risk.

The Food for Thought is developed specifically to keep neurotransmission as smooth as possible. If anybody needs more information you can e-mail me.

Whenever my mother feels something of disturbance in her head she asks me for the sachets however much she dislikes the taste of them. That makes that I feel I have taken a good decision. She feels much better and is much cleares during the day. I sincerely believe that solving things as natural as we can serves the body and mind much better.

Lots of success.

 

Check out allergies and food intolerance - research at Great Ormond St in the 1980's showed that many, but not all, seizures are allergy triggered, especially if there are other symptoms such as migraine, irritable bowel, asthma etc. Also get a full nutritional profile done. Deficiencies in some minerals can increase the likelihood of seizures. In particular, taking magnesium has been shown to decrease seizures. The ketogenic diet has worked for any people if you can find a dietician who understands it sufficiently. Biofeedback has also worked for some people.

There is a new paradigm emerging in regards to humanism (what can we do to make a human being better in how they perform in their life, from a biochemical, metabolic and metaphysical perspective). Traditional reductionistic medical diagnosis and the treatment methods that follow are simply not complete nor do they address the dynamic equilibrium of living systems.

Regarding seizures and epilepsy. Positioned at the apex of a new model (Wellness Model) of how we address the individual lies the brain. Since the brain is a physical structure ( I would argue/demonstrate that it is a physical-metaphysical bridge as well though not necessary here) that works both modally and holographically, we need to evaluate it physically and treat it functionally.

The brain grows (and re-grows) at 10 TO THE MINUS 9 SECONDS. Incredibly fast. It grows, fatigues, dies, re-innervates, changes and compensates constantly...at the speed of thought...with a single thought. It changes, both positively and negatively because of everything we do in the gravity well of earth, every sensory experience, the shapes of our thoughts, emotional production, experiences, challenges, etc. Of course the brain can only be as good as the nurturing broth that surrounds and invades its cellular nature, our own personal biochemistry.

I strongly recommend this individual seek out a brain based functional neurologist who can evaluate the brother and assess if the brain can be physically challenged to re-grow SPECIFICALLY so that epileptic seizures are not the PHYSICAL response from his current offset hard and soft wiring from the initial, scrambling, hemorrhagic event.

Please contact Dr Vincent Kiechlin who has enormous success with clearing such physical brain based imbalances. I'm sure he can help find a doctor in the UK. His email is  vgkiechlin@optonline.net . Tell him how you heard of him and tell him Dr Don sent you.

Great luck and best wishes.

Dr Don

If it is not too late, I would recommend that you test the brother with the off-label uses of the prescription drugs Hydergine or Phenytoin. They are older type drugs (the former has recently been removed from the licence of GPs) but reasonably benign with few side-effects which are usually mild. The are not toxic nor addictive and are well worthy of trying. They can be obtained through the Internet for personal use but their prices can at times be a bit OTT. Hydergine, in particular, is excellent at controlling the symptoms of ADHD for up to 5-6 hours at 4.5 mgs and also at controlling apnoea but, amazingly, few know of those off-label uses. Phenytoin possesses similar but less pronounced effects. From a personal viewpoint my first choice would be medication, then surgery as the last resort. I suffer from post-operative neurological problems which Hydergine effectively controls and has done for the past 18 years. As an additional, unexpected benefit, it has also controlled my chronic apnoea but guess what? My GPs thinks I am conning him! Like the teacher learning from the pupil, that is, if they'll listen? I have also witnessed the amazing control that Hydergine had over ADHD symptoms and drew this to the attention of Novartis which subsequently ceased its production; I wonder why? Of course it is now no longer patentable; could this possibly be the cause? I wrote twice and my correspondence was ignored.  I also drew it to the attention of the local hospital's drug unit whose chief pharmacist suggested that I must be mistaken; some fool he is! The strong message that comes across is the ignorance and arrogance that prevails within the medical fraternity. Tell a guy that he's an expert; provide him with certification of proof and, bingo, overnight he becomes a bumbling fool and a well paid one to boot!

I've treated clients diagnosed with epilepsy with Reiki healing and it has provided a significant improvement in their well-being.  I've not treated
anyone with as severe symptoms as this, but what tends to happen with Reiki is that the recipient gains a deep level of relaxation which supports them.  Regular treatments reduces the occurence of seizures.  Reiki can be learnt by the individual to help them better manage the situation.  

I've also heard good reports of a kinaesiologist in South London who has had a strong track record in alleviating epilepsy.  Her approach is based on the body's sensitivity to various substances.  I'm happy to provide her contact details if you would like to chat further with her to see if this is worth your while.

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www.HealthyinMind.com

The main problem with surgical procedures is that they cannot put back the removed tissues if the surgery has not been successful. Moreover if the diagnosis is wrong, as is surprisingly often the case, it could make matters worse. Medical diagnosis is hugely inaccurate. There are many cases of surgical procedures being ineffective. For instance we know of a lady who had her spleen removed as a migraine remedy. Result: continued migraines but with the additional problems associated with having no spleen. I would be interested to know if they have an explanation for why epilepsy or migraines occur. Look up the issues on the internet and study the various theories.  If there does not appear to be agreement on the cause of such conditions why should anyone trust the surgeon?  Surgeons do not go down with their ships!  What happens to those who suffer the after-effects of poor surgical outcomes?  Should the patient agree to surgery if the surgeon cannot give a guarantee that it will work?

G

A "must see" movie - First Do No Harm - a true story

When Lori Reimuller (Meryl Streep) learns that her young son Robbie (Seth Adkins) has epilepsy, she first trusts the judgment of the hospital staff in how best to bring it under control. As Robbie's health slides radically downhill, however, she becomes frustrated and desperate, and so does her own research into the existing literature on treatments. When she decides to try an alternative treatment called the Ketogenic Diet, devised long ago by a doctor from Johns Hopkins, she is met with narrow-minded resistance from Robbie's doctor, who is prepared to take legal action to prevent Lori from removing him from the hospital. This movie is an indictment of those in the medical profession who discuss only the treatment options they favor. Several of the minor characters are portrayed by people who have been not just helped, but cured by the Ketogenic diet

 

Great luck and best wishes

Marit 

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Marit Irene

Recognizing that epilepsy has varying causes, some epilepsy is driven by gluten intolerance or celiac disease.  There are some resources about this on http://www.celiac.com.

My cousin suffered a grand mal seizure once a month until she removed gluten from her diet more than seven years ago. Since then, she hasn't had a single one and has given birth to 3 children, (a girl and a set of girl-girl twins).  She has to be 100% on the diet or she gets the "prodromes," what she calls "eye flickers" which indicate that she might be about to have a seizure.  In seven years she has had some eye flickers when cheating on the diet, but never a seizure.  Look into it.

Best of luck,

Alix

http://www.mednauseum.blogspot.com
 

Epilepsy is due to brain neurons problem.Thats why epilepsy attacked. I have cured few epilepsy cases using Holistic Medicines.Do contact me sivamal@tm.net.my

 

Dr Siva

AMIr Holistic Medicine 

Would really need a lot more background on this case to comment.  You say the seizures are being controlled well, so that's the main thing realy.  How long since last seizure? 

 Also, I am guessing (being post haemorrhagic) that the seizures are focal or partial?  Are they?  Which AEDs is he talking and what doses?

 Epilepsy surgery can involve section of the focus of the seizures to prevent them from spreading.  However, I am surprised that he is scheduled for surgery if his seizures are well controlled. 

Like I say, would need more clinical detail but as a general rule, alternative therapies have not been found that help with uncontrolled epilepsy (which is exactly what would happen if he stopped taking his meds) and uncontrolled epilepsy is a very serious problem.  I'm not sure your reader should be asking for personal recomendations about the best way to treat serious epilepsy from random people on the internet.  Their neurologist will already have advised them on the best options for diet and lifestyle.  The opinions here are likely to give a very false picture of the disease and how it can be treated.  A specialist neurologist is the person to speak to.  As I am sure you understand it would be very remiss and downright irresponsible to advise your reader any different.

Jennings:

If it is not too late, I would recommend that you test the brother with the off-label uses of the prescription drugs Hydergine or Phenytoin.

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Phenytoin is a antiepileptic drug (AED) and should certainly never be taken without medical supervision.  Besides, this patient is already on AED polytherapy, so what would be the point in adding yet another AED to this if the siezures are under control?  Bad, dangerous advise.

Tell a guy that he's an expert; provide him with certification of proof and, bingo, overnight he becomes a bumbling fool and a well paid one to boot!

Too true.  Give a guy a computer and a search engine and suddenly he's handing out dangerous advise and complaining about neurolgists (who, ahem, have done a little bit more than simply be handed a certificate!) who treat epileptic patients every day!

There is a series of 6 Chi Kung exersizes which take perhaps 10 or 15 minutes to perform.  I have been told of a case in which the person suffered 20 or more seizures per day, but the incidence reduced to appropximately 3 per day when these exersizes were performed.  If interested, the reader needs to find a reputable and skilled shiatzu practitioner to give advice.