Thanks to everyone who has taken the time and trouble to reply to my initial query and to share their

experiences.  I feel rather over-whelmed.  Since I last wrote, we have stopped giving the Pentasa and consulted

a naturopathic doctor in London who has prescribed a number of supplements including Life Extension vitamin and mineral powder, 

a strong lacto-bacillus supplement, gluatamine and EFA oil.  It is early days yet.  We also decided to try the SCD diet and although it

reduces some of the symptoms of Crohn's it is really depressing and I am not sure how healthy it really is over the

long-term.  We have in the past tried Aloe Vera and Ambrotose but they didn't help my son.  I personally live on Ambrotose and

Synergy powder (greens)  with good results. 

  I am also researching the NO GRAIN diet by J. Mercola.  They have an amazingly good website and we might adopt that

diet and health advice in the future.  The consultant at the children's hospital in Brighton wants to prescribe steroids and

azathioprine urgently but we are so against it and are "buying time" so we can hopefully avoid that.

I will try and follow up some of the myriad of suggestions.  Thanks to all of you for the good wishes and support,

and good luck in your journeys towards health and vitality!

Leah Landau