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Huntingdon's disease

Last post 07-08-2008, 1:16 PM by Folker. 6 replies.
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  •  06-18-2008, 8:44 PM 4552

    Huntingdon's disease

    Someone I know has recently been diagnosed with Huntingdon's disease. People with this disorder eventually become physically and mentally disabled. Apparently, no satisfactory treatment is available to stop or reverse Huntington's disease. Some drugs and therapies can control signs and symptoms, but not stop it.


    Does anybody have any experience with this disorder? Anything that can help?

     
    thanks,

    Sofie-Ann 

  •  06-24-2008, 9:46 PM 4614 in reply to 4552

    Re: Huntingdon's disease

    Thanks for your post. I used work for a genetic charity and we frequently stated that Hundingdon's disease was incurable. In fact we often cited it as example of how a particular genetics lead to a particular result.  However, over-time I have come across evidence that it may be treatable, especially if treated in the early stages.

     Dr Abram Hoffer (a Canadian medical doctor), who has done most of his work round schizophrenia sets out to treat it primarily with Vitamin E. I think he also often uses high doses of Vitamin B3.

     If I recall correctly he recounts one case in his book: "

    Putting It All Together: The New Orthomolecular Nutrition  

    Putting It All Together: The New Orthomolecular Nutrition

     Available from Amazon.

     If you haven't heard of him Dr Abram Hoffer is the leading light behind meganutrient or Orthomolecular medicine. (Orthomolecular medicine was a name given it by Chemistry & Peace Nobel Prize winner, Linus Pauling).
     

    Another, more recent, line of enquiry is possibility that eicosapenaenoic acid (EPA)  which is found in fish oil could help. Ethyl eicosapenaenoic acid (for your information, when you are reading scientific studies) is a chemical extract that seems to work in a very similar way to eicosapenaenoic acid, though it is chemically slightly different.

    typing huntingdon's EPA into Google gives you a good range of results.

    Warning: because it's a rare condition doctors (especially GPs) are highly, highly unlikely to be up-to-date with the research. 

    It would be good to hear how you get on. Do keep these boards posted.  

     If it can be shown that Huntingdon's is reversible with nutrients then it will be important for those affected by the condition and also ALL the other people who assume genetic equals inevitable. It's time that perception was changed!

     Good luck with your search.]

    Best wishes,

    Imogen
     

  •  07-01-2008, 12:34 PM 4659 in reply to 4552

    Re: Huntingdon's disease

    Have you seen this website? It provides both drug and nutritional treatment suggestions.

    http://hddrugworks.org/index.php?option=com_content&task=view&id=163

     

     Sandy

     

     

  •  07-01-2008, 3:02 PM 4674 in reply to 4552

    Re: Huntingdon's disease

    Here you can find some more about Orthomolecular medicine.

    Hoffer A. Control of Huntington's disease by orthomolecular treatment.

    http://www.doctoryourself.com/huntington.html


    Best wishes,

    Marit
     


    Marit Irene
  •  07-01-2008, 11:44 PM 4679 in reply to 4552

    Re: Huntingdon's disease

    The only truly beneficial technique I have come across is one called lipid exchange pioneered by Patricia Kane at the Haverford Health Clinic in New Jersey. She has a number of cases of Huntington's chorea which have responded rather dramatically to this treatment which involves the 'washing out' of either environmental toxins, viruses, or abnormal fatty acids out of the neuronal cell membranes and replacing them with an infusion of the appropriate lipids. Her results are often stunning with a whole range of neurological disorders spanning autism, parkinson's, MS, neuro-Lyme, Alzheimer's and Huntington's. There are a handful of pracitioners in this country who can perform the necessary investigations and subsequent treatment. I would start off by contacting the clinic in the US first.

     SP

  •  07-02-2008, 5:54 PM 4684 in reply to 4552

    Re: Huntingdon's disease

    The brother of a friend has had Huntingdon's chorea for 20 + years. He recently tried  a relatively new supplement,derived from a totally natural source ,and was able to speak coherently after 3 days. Ten days later he felt emotion and had tears in his eyes, all this after 20 years.You can learn more about this product, which releases your own adult stem cells into the blood stream, by looking at www.healthvitalics.stemtechbiz.com and click on the union jack,
  •  07-08-2008, 1:16 PM 4717 in reply to 4552

    Re: Huntingdon's disease

    From my experience of some 20 years with patients diagnosed with Huntington's, Chorea minor, Tourette syndrome and similar neurological disorders I nowadays prefer at first a energy medical scan with NES device and a acupuncture based routine of identifying foci of disturbance to find out, where the major problem is. It is mostly not (only) a matter of nutrition. Neurological problems like HD may - despite the genetic basis - also be based on emotional oscillators. With a NES scan you'll find the reasons behind and get an idea of subsequent treatment.

    Kind regards from Germany

    Folker

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