I've just been diagnosed with this after 7 months of tests and misdiagnosis and want to hear from anyone who has it and who has had treatment, either the NHS laser treatment, the Photodynamic Therapy (which I am not sure is even available in the UK0, or the Avastin.injections, which is not on the NHS.  Also from anyone who has had it where it cleared up on its own, as mine shows absolutely no sign of leaving. 

CSR causes grey patches in the vision and make lines and edges appear to have curves in them, but as mine is in the vision just out side of the centre it induces you to try and look at the patch, which of course moves as you look and I think I've had a headache since last September due to the distortion.  It's a real nightmare walking down stairs and the like, bits of the stairs appear missing and I've nearly fallen a few times by misjudging things, also working with spreadsheets all day is dreadful as the lines are jumping about and blurred.  I've looked in to the injections at £1100 per injection, but with no guarantees and the likelihood of needing 3 injections its not a decision I can afford to take lightly.

I look forward to any comments. e 

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Central serous retinopathy occurs unilaterally as acutely decreased visual acuity and metamorphopsia in young to middle-aged adults usually  employed in stressful occupations. The disease is self-limited, although permanent visual deficits have been reported. Focal laser treatment reduces duration of symptoms but does not improve final outcome. Avastin (bevacizumab - anti-growth-factor monoclonal antibodies) intravitreal injections are known to be more effective, but may still be under clinical trials. If you have any experience of participating in clinical trials then you might have a chance to receive this treatment for free, but you have to be available during normal working hours and weekends.

If this condition is self-limited - why not try bioresonance ophthalmo-colour therapy goggles with USB connection to your computer only for 110 pounds plus VAT? My company In Vivo Health Ltd sells these googles, and this product description will be available on our website in a few weeks time. If you are interested, please contact me, and I will email you more detailed information.

With best wishes,

Alla Cranham. 

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Alla Cranham, MSc ABMT,
Registered Homotoxicologist

Mercury House
Northgate
Nottingham
NG7 7FN

Tel +44(0) 845 450 7316
Mob +44(0) 77361 47458
Fax +44(0) 115 9163109
http://www.in-vivo-health.co.uk

Have you tried Serrapeptase, the stronger 80000 would probably help.From Health Naturally I think or Nutri,London

Regards.Cliff

Please could you say more about Serrapeptase in the treatment of CSR?

I too would be most interested in the colour goggle therapy you mention. More info please?

I've had this condition for just over 3 years now. The only treatment I have ever heard of is with laser, but was advised against it due to side effects and told that within 10 years it appears not to be any more effective  than doing nothing.

Mine is gradually dispersing and now far less noticable than in the first few months, (when it did drive me nuts).

Has anyone any experience with this condition, taking herbal supplements meant for general eye health?

I have no idea what you mean by self limited, please can you explain, if I could self limit my symptoms I would, because it's driving me crazy.  That said I would like to know what your goggles are all about, how do they work, what would they do for me, how can they help?

Thanks

Karol

 

.

I am a Bates Natural Vision Teacher and  a practitioner in the Emotional Freedom Technique. I would fully recommend your first choice of treatment would be to look at your problem from a Natual Point. Bates Natural Vision Education www.seeing.org would give you sound advice on the way to go about your vision problem in a natural way. Dr Bates (1860-1931) had much success with many difficult eye problems when he researched the way the eyes worked naturally and his teaching is carried on today. I personally live in North East Lincolnshire and would be very pleased to see you but I do not know your geographic situation, however, there are teachers in other parts of the country and can be found on the website.

The Emotional Therapy Technique is a Meridian Energy Technique for which I use as a tool to aid the relaxation side of  'The Bates Method' .I personally find these two therapies work extremely well together. Independant research been also been done successfully on 'Improving Your Eyesight' by a lady called Carol Look with the Emotional Freedom Technique alone. Many people have been able to improve their vision problems with natural ways, lasting results and at a cheaper financial cost. Even more importantly when the eyes become more efficient in the natural way the person feels so much better and in control of their own lives.

"Self-limiting" meaning a disease that tends to cease after a definite period. 

As your condition is most likely to be caused by continuous eye strain due to occupational stress, the Green Light Goggles first of all will help to reduce the causative factor. Apart from that the Green Light will activate molecular interactions within the site of problem in a favourable way.

Perhaps it could be comparable with Photodynamic Therapy (but as a cheaper version of it).

Photodynamic therapy requires administration of photosensitizing dye (usually intravenously) which localises to the target tissue. Light irradiation of this tissue at maximum absorption of the dye elevates the photosensitizer from its electronic ground state to a higher (excited) state level. The excited photosensitizer quickly returns to the ground state and in the process transfers the energy to other molecules forming singlet oxygen which then reacts with proteins, nucleic acids and lipid membranes.

In case of Green Light Goggles there is no need for a dye administration to activate the molecular interactions within the site – it’s done by using the green colour light instead of the dye. During the 4-8 minutes session you will see an alternating trembling green light in each eye at the time (even with your eyes being closed). This also produces relaxing effect on the muscles behind your eyeballs thus allowing for better blood circulation in this area, which in return will favour the self-regulatory processes and trigger the self-healing mechanism.

The treatment using Green Light Goggles may take longer compared to Photodynamic therapy, but this could be justified with the costs. 

Green Light Goggles with USB connection to computer are designed to provide bioresonance light therapy for people with overstrained eyes, stressful lifestyle and people with psychosomatic conditions. 

The method is based on human body's ability to react to different electromagnetic frequencies of a visual spectrum band via the organs of optic perception (eyes).

The bioresonance light therapy allows influencing alpha-rhythm of brain, craniosacral rhythm, immune system and overall molecular interactions in a favourable way.

Indications for use:

·          fatigue

·          harmful industrial and professional impacts (e.g. computer overuse or eye strain)

·          chronic and immune conditions during remission period

·          neurotic reactions, neurasthenia and depression

·          psychosomatic conditions

·          insomnia

·          headache

·          osteochondritis

·          hypertension

Contraindications:

·          Acute eye inflammation conditions

·          Acute medical conditions and injuries

·          Epilepsy (consult your doctor)

·          Tumours of different localisation (consult your doctor)

·          Posttransplantational conditions

·          Children under age of 3 years

Mode of application:

For eye strained patients: use for 4-8 minutes with closed eyes up to 3-4 times daily for three weeks then stop for the following two weeks. Repeat the same course three times. 

Green Light Goggles are supplied with installation software CD.

 

 

If you would like to place an order please email to: info@in-vivo-health.co.uk or call reception on 0845-4507316

 

 

Alla Cranham.

 

---

Alla Cranham, MSc ABMT,
Registered Homotoxicologist

Mercury House
Northgate
Nottingham
NG7 7FN

Tel +44(0) 845 450 7316
Mob +44(0) 77361 47458
Fax +44(0) 115 9163109
http://www.in-vivo-health.co.uk

I have uveitis which comes with a mass of other eye conditions and the central vision in one of my eyes is like the vision you describe. The good news is that you have two eyes and your brain will gradually adapt to the mixed images coming from each eye. I do not notice the distortion in my left eye and the lack of true colour anymore because my brain takes the best each eye offers.

I've had avastin and lucentis injections. Lucentis is near £2000 privately and avastin between £600 - £1000, depending on who does it and where. You can get avastin on the NHS and if you google clinical trials in the UK for anti vegf you'll probably find there are studies going on in the use of all three anti vegf drugs:  avastin, macugen and lucentis.  Avastin and lucentis are superior  at restoring lost vision. The effect of avastin can be up to three months, while lucentis exerts an effect for a month. If you think of the back of the eye like a sponge, the effect of these injections is to squeeze moisture out.  And yes, you are likely to need a series of injections.

The injections themselves don't really hurt. I told my retinal guy that I wished he were dentist, because dentists hurt a heck of a lot more when they inject gums. The effect on my sight with lucentis was startling and happened within hours. Avastin took a few days. You do have to be aware though, that if your retinal cells have died, these drugs will have no effect. A retinal surgeon should be able to tell you if anti vegf will help.

There are all sorts of exciting developments for retinal conditions. If you wish to read some, go to the 'My Vision' website. You'll also find some online check your vision tests there. In this month's newsletter on their site, there is an article about the beneficial effects of fish oil on retinal health.

The best thing you can do is to get yourself referred to a specialist, preferably one involved actively in research. If your clinic has taken so long to make a diagnosis, you're not in safe hands.  I certainly wasn't to begin with and requested a referral to a specialist of my choice. Beware any eye doc who tells you, don't worry, your other one still works.

Best of luck..

I can only tell you something from the experience that a cousine of mine has had with the problem. She received Photodynamic Therapy in Barcelona for many months and apart from paying a lot of money and feeling like a number in a clinical trial, she didn't experience a clear improvement. She has on the other hand confirmed that everytime she has a problem in her personal life, mainly family bussiness discussions, her eyes got worse. Now she has almost stopped working and lives much more relaxed and stable with the disease, doing a nearly normal life. From time to time (3-4 times a yerar) gets, just when it's necessary, a simple cortison treatment in a very good specialized eye clinic she found in her hometown.

I hope this helps you, Maria.

 

There are all sorts of exciting developments for retinal conditions. If you wish to read some, go to the 'My Vision' website. You'll also find some online check your vision tests there. In this month's newsletter on their site, there is an article about the beneficial effects of fish oil on retinal health.

I can't find this website! What is the actual URL for it? I tried googling 'my vision' but loads of different websites come up both eye-related & nothing to do with eyesight.

I was diagnosed with Proliferative Diabetic Retinopathy 9 months' ago (I'm 43 with 35 years of Type 1 diabetes) & have had 3 sessions of laser photocoagulation on one eye (painful & not happy with ongoing side effects) but have withheld having laser treatment on the second eye to try Pycnogenol. So far things are stable. Pycnogenol is unheard of in UK & USA but widely used & researched in Europe & elsewhere, and even licensed for use in treating diabetic retinopathy in France! It's a herbal extract from the Maritime Pine (Pinus pinaster) in France. 40 years of research written up in 'reputable' scientific & ophthalmic journals (had to get a doctor friend to access these for me, hospital have been useless & unsupportive - Moorfields). It strengthens fragile blood vessels, has anti-oxidant properties, reduces platelet adherence (platelets sticking to each other) - infact much more effective than aspirin without giving you stomach ulcers - so helps increase blood flow, promotes wound healing including faster clearance of blood after an eye haemorrhage etc etc...lots more. Why is there no knowledge of it in this country?????

Pycnogenol is available from Holland&Barrett in different concentrations from £5.23 to £18.49 for 30 capsules.

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Alla Cranham, MSc ABMT,
Registered Homotoxicologist

Mercury House
Northgate
Nottingham
NG7 7FN

Tel +44(0) 845 450 7316
Mob +44(0) 77361 47458
Fax +44(0) 115 9163109
http://www.in-vivo-health.co.uk

Hello...Two things...One, either take a sabbatical, take a vacation or quit your job immediately...Tell your boss or whoever that it is for your health...This condition can reverse itself...Don't go back to work until it does...This is your life...If you go blind, or hurt yourself in some other way due to eye obstruction, is it worth it ? no...get out while you can...this is obviously job related...leave...Two, taurine is very good for your eyes, get a heavy duty supplement of taurine & take it...but don't continue working at your job...no amount of money will fix this thing if you continue working, sorry...

Fourteen years ago I noticed a distortion in my right eye. My optician askd if I had a head injury. I told him I hadn't. He said he had never seen anything like it before. I was referred to an eye clinic who said it was Krils Disease. I was told it would clear up in six months. It did not. I was referred again and again to different specialists who also diagnosed many different conditions.

Finally, about five years ago, I was a guinea pig, and eye specialists all over Britain looked in my eye. They finally diagnosed my with C.S.R., but I am still not sure.

I am still asking specialists if anything can be done and they keep saying no. Now that I have rad the forums on WDDTY, I have more hope. Any suggestions would be appreciated.